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Showing results for tags 'sms'.
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Good people of CTO, I have a favour to ask. In a couple of weeks’ time I will be doing a Lands End to John O’ Groats bike ride solo and unsupported. Its 1,000 miles and I’m going to try to do it in 8 days. That is a lot of work and yes, I’m doing to support a charity. This one is very close to my heart, The Smith-Magenis Foundation UK. Max, my grandson, has SMS and you have probably never heard of it. Well, you have now. It’s called Smith Magenis Syndrome (SMS) and it’s there because Max got born without a tiny bit of chromosome 17. It just happens in 1:25000 births, no cause, and no history. What you won't have heard of are the sleep disturbances (he doesn't) the meltdowns, the rubbish eyesight, the amazing ability to cause self-damage, the learning difficulties and all the rest. Max won't tell you about it either because he can't speak yet. He will let you know how much he loves you though at almost every opportunity. Hugs, hugs and more hugs. If you good people want to add to the £1200 or so that we have already raised towards our £2K target, you can go to https://mydonate.bt.com/fundraisers/davidbalfour1 and put in whatever you can. Alternatively, I’ve got myself a new and unworn ICTFC home shirt which is signed by the first team squad and which ICTFC have generously donated. If you want it, please DM me on here with a bid. You know you want it and Max and I would be really grateful.